Why I Walk: Kevin Cook

Why I walk...

I walk because I can; I feel like it’s my duty to walk for all who cannot.

While I lost many close personal friends whom I keep in my heart and mind, especially on AIDS Walk day, I walk for those who had no one during their final days, whose friends and families turned their backs on them. In the late 80’s and early 90’s, I witnessed a lot of that--and surely there were many whom I never met or knew very well, but who deserve nonetheless to be remembered.

When our Community first was hit and we started losing friends and loved ones, the Drag Community jumped right in and began raising funds and awareness. To date, sadly, I can list over 100 drag performers who we have lost, among those my closets and dearest friends who created and shaped the entertainer I have become. Most of what I do these days in my “career” is dedicated to them--being a successful full-time drag performer and emcee is possible because of their guidance and inspiration. The many times Poison Waters has emceed the AIDS Walk has been my “toast” to these “ladies”.

I walk for my ”sisters” Misty, Rosey and Lady Elaine Peacock.
I walk for those we’ve lost who had no friends and family.
I walk because it’s the very least I can do for those who cannot.

I love the sense of Community the Walk provides. When I was a teen I wanted to do ANYTHING I could to help raise awareness of HIV/AIDS and show support for my Community. The Walk allows everyone to participate through this very simple act of joining. No matter a person's age or financial situation, everyone can be a part of this very important Community event.

While I’m sure I’ve been walking since the early 90’s, I know this will be my 11th consecutive year on the Camp Starlight Team! My birthday is September 17 and I always get most of my donations around that time. I send messages and reminders to my friends and family via e-mail, Facebook and texting, asking for donations to AIDS Walk instead of birthday gifts.

Why I Walk: Drew Picard

Why I walk...

I walk for those that cannot, plain and simple. It's a somewhat cliche and cheesy response, I know; however, I feel as though it is one that is never expressed enough.

This ailment has affected so many people and it will be years before we touch the lives of everyone that it has changed. Our participation, yours as well as mine, shows the world how much we care and that we are not going to just stand by while it takes another life. Just as with the other obstacles we face through out our lives, this battle will be won with massive involvement. This world has yet to see what we are all capable of, if we just stand up together for what we believe in and the people we care about.

So, I walk to show even just one more person that I am here to make a difference--one step at a time!

I have many friends that are affected by HIV/AIDS and whose lives have changed because of it. Yet, I see strength in all of them. Never once have any of them stopped living. I walk for all of my friends, in their name and for my own.

This walk is important to me, for it shows that we are willing to band together and fight for the truth, and for our beliefs. We get our chance to show that we are a force to be reckoned with and that we will fight long and strong for everyone that needs our help.

This will be my second year actually walking, but third year in participation. I have enjoyed playing many roles and lending a hand when ever I can. It's been a blast so far this year, and it's only going to get better!

It's hard to find a person that is not already informed or knowledgeable about the walk or what we do. Still, I spread the word and try to get people involved any way I can. Working at my bar provides a steady influx of customers that are willing to help with donations and even volunteer to walk. It is truly awesome to see the city organize and band together to show support. Way to go Rose City!

Daren Parks: Why I Walk

Why I walk...

I walk because I believe that everyone deserves to live a life free from pain and suffering. I walk for my dear friend Louie, his family and his friends. We will never forget him.

The walk has always been a very important part of my life because I am gay. In the early 90’s I was approached by one of our Health Club Members inquiring if I would be his Personal Trainer. He told me that if anyone could help save his life, it was me. He said that I inspired him.

In speaking with him about his needs and goals, he informed me that he had been recently diagnosed with AIDS. He feared that he did not have long to live. I asked him how he had heard about me and he said that he had been observing me train clients for over 6 months and finally worked up the courage to speak to me.

He told me that he was embarrassed to tell someone he had AIDS and that he was terrified that I would judge him and refuse to train him. He had been turned down by 3 other fitness professionals. I began crying and assured him that his search was over.

I trained Louie for over a year and a half before he lost his battle with the disease. Our time together was much more than Personal Training. There were times that I trained him at home because he was too physically weak to get to the gym. I remember holding water for him so he could drink because he didn’t have any strength to hold the glass. I remember getting blankets for him to stop him from shivering. And there were times that I held him while he cried himself to sleep. I wanted him to know that he was loved.

Ironically, at the end of it all, it was his will to live and bravery that inspired me.

I began walking in the mid 80’s in Albuquerque, New Mexico by organizing a team, speaking at the event and leading the warm-up. I continued my involvement with the walk in Phoenix, Arizona and in Denver, Colorado. In all cities, I was instrumental in ensuring that our Health Club was a major sponsor and promoter for the event. Our Club served as a platform for meetings and kick-off parties.

I communicate my passion for the walk through work, social media, email, volunteer time and by giving back to the community.

We all have an opportunity to make the world a better place. The decision you make to help others must we done with diligence, commitment, passion and be relentless! It must come from the heart and be unselfish. There is always something you can do.

Andrew Shayde: Why I Walk

Why I walk...

I walk because Americans still die of AIDS. This is my 2^nd Walk.

I was born in June 1981, the exact month that CDC released its first official statement about AIDS. I have never known a world without HIV/AIDS and I think people have grown complacent about the subject. Up to 80% of those living with HIV/AIDS are still gay/bi men and I want to walk to educate so that my friends don’t add to this statistic. I want to change the tide on this disease and lead the way to a decrease in infections by reminding people that HIV still lives here.

I walk for ‘Mo’ my first friend that I lost to AIDS. I went to his funeral where they said he passed of cancer because saying the word AIDS was apparently too controversial. I thought, people keep getting sick because we can’t say the word AIDS out loud.

Because, in America, up to 18,000 people still die of AIDS each year. More than 279,000 gay and bi men have been lost to the virus.

I am the Team Leader for The Ultimate Alliance: Superheroes for HIV. We are raising funds and dressing as our favorite Superheroes in the attempts to gain more attention back on the important topic of HIV/AIDS in Portland and to create a fun energy to help decrease the stigma placed on the words HIV/AIDS.

I work in HIV testing and counseling and I would LOVE to put myself out of a job by playing my role to help eradicate this disease. I’d rather flip burgers all day in a world without HIV.

Dale Hottle: Why I Walk

Why I walk...

My story began 13 years ago as a boy, raised in a conservative home and barely out to himself. A good friend disclosed to me that he had recently tested HIV positive. I was shell-shocked, frozen. I only knew HIV/AIDS as a death sentence--and one that only “wrongdoers” could be afflicted with. My own fear and ignorance were my shield and my sword that night, and they cut me from my friend. I silently turned my back on him and walked away. I will forever regret that moment.

I started volunteering with the Colorado AIDS Project a year later--and when I moved, I continued, volunteering with the Utah AIDS Foundation and then Cascade AIDS Project. My motto became “if I can reach out and make a difference to one person then everything is worth it.” I wanted to raise awareness and hopefully prevent someone from shunning another the way that I had in my ignorance. That friendship--a person to laugh, cry and smile with--can make a big difference to someone living with HIV/AIDS, a lesson that I learned well over time.

I tested positive three years ago and it fractured my life. While I had advocated ending the stigma to others, I still harbored it within myself. This great hypocrisy could have destroyed me--and nearly did. I resorted to drinking and shoved my friends away, isolating myself; I was so fearful that others might shun me that I alienated them from myself first.

Then, two strangers that I had only recently met became my guardian angels. They helped me turn my life back around, so that I could see past the disease to a life beyond. I was fortunate enough to receive the gift of understanding that I had once denied my friend. I can only be hopeful that he and others will be as lucky as I was.

So why do I walk? Well, the short answer is selfish: to find a cure and end the stigma that surrounds the disease.

But the long answer is that I walk for a cure to end this pandemic. I walk to educate others so that they may protect themselves and be accepting when someone else imparts their status. I walk to say thank you to the guardian angels that have provided aid and support for me and so many others through our darkest hours. Finally, I walk for Aric, the friend that started this journey; he changed my life in more ways than he will ever realize.

Unfortunate Trend: Decline in Media Coverage of HIV-AIDS

On December 3rd, Businessweek ran the following story: Dramatic Decline Seen in AIDS News Coverage

According to the study that prompted the article, "Media coverage of HIV/AIDS fell more than 70 percent in developed countries over the last two decades, [most notably] in American and French newspapers[...]" the article goes on to note that "[while] media coverage of HIV/AIDS has decreased in some nations, coverage has remained at a high level or increased in areas hardest hit by the AIDS pandemic, such as South Africa."

As is the case with many of the important issues facing us today, this disease is a daily reality for millions around the world, yet it is being largely ignored by those who could do the most good. In 2009, it was estimated that as many as 35 million people world-wide were infected with HIV/AIDS.

This is not something that will go away if we ignore. 1 in 5 people infected with HIV is unaware of their status. Every 9.5 minutes, another person in the United States is infected with the virus. We need to stand together to keep each other safe and healthy.

President Obama recently released a national strategy to combat HIV/AIDS in our communities. The Oregon legislature recently mandated that human sexuality education in schools must be medically accurate, age appropriate and comprehensive, teaching youth how to be safe if they are sexually active. We are taking steps to stop the spread of the virus, but we have more to take. One of those is to remember that this is not an issue we can let fall by the wayside. Awareness is necessary to end the stigma attached to HIV/AIDS, to increase access to medical care for all those infected or at-risk of infection, and to prevent the spread of the virus. Perhaps someday we will even find a cure--but not if we stop looking.

"The vast majority of HIV/AIDS research occurs in the developed nations, so the apparent lack of interest in those countries may harm efforts to find ways to fight the spreading AIDS pandemic in developing nations, the researchers said."

 We all need to be leaders in this. Many people look at the lack of reporting and take it to mean that instances of infection are declining; they aren't. They should be, and we can ensure that they do by educating ourselves and each other on the facts, practicing safe sex and getting tested.

Camp Starlight

Camp Starlight is a week-long residential camp that provides children whose lives have been affected by HIV/AIDS the opportunity to enjoy a caring, safe, recreational, spiritual, and fun camping experience. Every August since 1999, 65 children ages 5-14 travel to the Oregon Coast to enjoy a week of fun.

This amazing program is happening this week. It is one of the many programs that monies raised at AIDS Walk Portland supports. Please share this video far and wide.

CAP Program Highlight: Camp Starlight

Camp Starlight, a program of Cascade AIDS Project, is a residential camp that serves children and youth ages 5 to 14 from across Oregon and Southwestern Washington. The program gives HIV-affected and -infected children the opportunity to enjoy a week at B’nai B’rith Camp. At Camp Starlight, children dealing with HIV themselves or in their family can feel “normal” knowing every other child at camp understands their situation. Camp Starlight partners with another program at Cascade AIDS Project called “Kids Connection” to offer campers and their families activities throughout the year to help maintain friendships and build lasting support networks.

During a typical day at Camp Starlight, campers eat breakfast together at about 8:30 am, then separate into groups based on age for a morning fun, doing such things as archery, canoeing and dance, playing music, and enjoying nature, pool time, and arts and crafts. After lunch, campers have a rest period when the younger children usually take naps. Then another cycle of activities begins, including a “free period” where campers can choose the activity they prefer. Each night, there is a different activity. One evening is movie night- campers bring their sleeping bags to the baseball field to watch a movie and sleep under the stars. On another evening, campers hold a talent show called “Night of a Thousand Stars”. On yet another night, Camp Starlight holds a carnival with games and costumes.

Camp Starlight works to ensure safe space for all attendees. The camper-to-staff ratio is about two to one rather than the eight-to-one ratio in an average camp. This high number of staff promises that each camper is showered with attention and acceptance. Additionally, other than a fun, first-night skit directly addressing HIV, campers are free to talk about HIV—or not—as they choose during the duration of the camp. Attendance is free of charge to the campers, which is the only way most of the campers are able to attend.

Camp Starlight gives children a chance to recover from the stress of living with HIV and to spend time with other children who understand their challenges. This builds resiliency and sense of community, which, in turn, decreases feelings of isolation and improves social satisfaction and well-being. In taking away the fear of talking about HIV, some of the stigma of HIV lifts. It is only by talking about HIV, asking questions about it, learning about it, and understanding that people living with HIV/AIDS are among us as friends, neighbors, and coworkers that we can confront the pandemic head on.

More information is available on the camp brochure. For information about becoming a camper, please contact Angie Raffaele-Burns, Camp Starlight Coordinator, at 503.223.5907 ext 3823.